Well my lifestyle really changed after my lung transplant, because I was in a medically induced coma for 2 months. when I woke up I found out that my kidneys had shut down and that I would be on Dialysis and need a Kidney transplant. Knowing when to take your meds, mine were Prograf, an antibiotic, folic acid, and the wonderful drug Prednisone is so important, taking them on time and exactly the same time every day will keep your body from rejecting your organs. also staying away from large crowds, like going to the movies. My husband and I would go to the matinee at our local movie theater and sometimes we would be the only ones there. We wouldn’t go during the summer because there were too many kids, and we all know that kids are the worst for spreading germs, unless you want to wear a mask every where you go. I carry hand wipes and a purse size can of Lysol to spray the theater seat. I know how it sounds, but unless you want to land in the hospital with every kind of virus and bacteria known to man you will do it.
Dialysis is a whole different story. My treatments were, Mon, Wed,Fri, for 3 hours. I was on it for a little over 3 years. I received a kidney in August of 2013…… More on this later!!
I was born with a congenital heart defect. In the 1970’s it was called a ventricular septal defect, but these days it is called Eisenmenger’s Syndrome, obviously by a Dr. named Eisenmenger. Actually what it is, is a hole in the tissue between the right and left ventrical. It wasn’t discovered until I was 17 years old. By then it had caused great pressure in my lungs. I had Pulmonary Hypertension secondary to Eisenmengers Syndrome. Nobody wanted to do surgery, so i went on with my life. I went back to school and received my nursing license. I had my first surgery in 1992, to repair the heart at the Cleveland Clinic. It was a success, my pressures in my lungs came down and I healed well. I went back to work and was able to work for seven more years, before my lungs became worse. I had a right heart cath in 2000 and was put on a medication called Flolan which I received through a catheter in my chest. I was on Flolan for 9 years, couldn’t work any more in a hospital setting and just waited until my lungs were bad enough to go on the transplant list. I had my double lung transplant at the Cleveland Clinic in 2009.
I want to talk about all the joys and all of the difficulties that I experienced through this journey which is not over yet, so please follow with me on this blog and share your experiences and comments with me